I have Endo-what??? My story about being diagnosed with endometriosis

Young and invincible…. looking back, I am sure most of us can agree that is how we would describe ourselves pre-baby.

But when you notice it hurts to have intercourse, hurts to have a bowel movement and your monthly cycle is filled with pain and discomfort, the last thing a young person thinks is that it could affect their fertility.

I was no different. I didn’t get it checked out, I thought it was just a normal part of growing up – though this was at the age of 25 so I should have known better I guess.
When it became almost too painful to have intercourse or a normal bowel movement I decided it was time to get it checked out.

My diagnosis was “severe” endometriosis around all parts of my reproductive organs and bladder.

I remember the conversation in my doctors office well…

“We won’t know how bad it really is until we get in there, but from what we can tell right now, it is really bad” .   Great.

“You need surgery right away”. I’m sorry…what? What does that mean? Am I going to be in pain forever? Is it life threatening? Can I have kids?
The answers to the questions in my head ended up being all very concerning and negative.

“Given how bad it is now, we do expect that even with surgery, it will return again”

“You will only have a few months’ post-surgery to get pregnant before you can expect it to start returning”. And then right after that, they tell us we can’t have intercourse for 6 weeks after the surgery….

So basically what you are telling me is that I have 1 cycle to conceive? And this is our ‘first crack’ at trying to conceive, and what the heck does anyone know that first time??!!!
Wow….so  basically I am not getting pregnant – is what my mind kept repeating.

“If you do not get pregnant in this time and the scaring comes back, you will have to start the process over again”.

So, if I don’t get pregnant that very first time and if the scaring comes back, then this is the future I am looking at in order to have a baby?

Not sure what you’d do in that situation, but I remember what I thought. Get the surgery and forget about it.
In reality I had the surgery and waited to see if it came back. As far as I could tell 1 year later, it hadn’t so we decided to give it a first try.

My husband almost literally took one look at me and I was pregnant. Yes, we are that fertile!
12 years later, and 3 babies in, I don’t believe it has come back.

I have heard many similar stories over the last 10 years, so my advice to you if you are facing this…. stay positive, take care of yourself and know that many women with this diagnosis go on to have families after treatment.

salsa babies instructor bio jennifer matthews



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